The day my journey as a father took a different turn My son, Testimony, was born on 16 January 20007 at the Federal Medical Centre within the Railway Compound, Ebute Metta, Lagos, Nigeria. His birth was a wonderful moment for me. He was delivered through a Caesarean section, and I had the privilege of carrying […]
My son, my starboy: A father’s journey with Spina Bifida Read More »
I was born on the 15th of October 2002 to the family of pastor and pastor Mrs Oluremi Samuel at Ayinke House, Lagos State University Teaching Hospital (LASUTH) where I was diagnosed with Spina Bifida and later referred to Lagos university teaching hospital (LUTH). Two weeks after birth, treatment on a full scale started. I
My bittersweet experience living with Spina Bifida Read More »
I am the last child of my mother. My parents made it clear they would never bubble wrap me or my siblings. While they cared deeply for their children and kept a close eye on them, they also made sure I must experience the same things of other children my age, even though I was
WSBHD2026: A lifetime of experiences growing up with Spina Bifida Read More »
My story is not a story of a life without hurdles. It is a story of moving forward when the road feels hard. It is a story of courage that grows in the quiet moments. It is a story of hope that refuses to fade. It is a story of dreams that will not be
My story: Hurdles, Hope, and a Heart that will not give up Read More »
Being born in the 1960s in Nigeria is peculiar because that was the period the country gained its independence after many years of colonial rule under the British. It was a period of new beginnings and the unknown, and one of such people born in that era was Olufunke Ogunrombi. Born on January 3, 1965,
In an earlier article about Samara Funmilayo, her parents never thought a life-long neurological condition like Spina Bifida and Hydrocephalus (SBH) would come the way of their daughter and first child. That was pretty much the same expectation of Mr Oluwaseun Adesina, a realtor, and Mrs Christiana Adesina, a hair stylist, when their first child
How brilliant 14-year-old Opeyemi is defying the odds living with Spina Bifida Read More »
At only two days old, I had to begin my first life through the walls of the surgical theatre because of Spina Bifida and Hydrocephalus. I was just a fragile little baby girl whose parents had no idea of how life will turn out especially since there was less knowledge was available by that time
Ephrance’s journey in defying the odds against Spina Bifida and Hydrocephalus Read More »
Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International
International Women’s Day: How Nadongo uses her SBH disability to accelerate progress Read More »
Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw
WSBH Day 2023: My experience living With Spina Bifida Read More »
Every October 6th is celebrated as World Cerebral Palsy Day. It’s a day to raise awareness about the condition and also to push for demands in creating an enabling and inclusive environment for those living with the condition. This year’s theme is titled millions of reasons. Cerebral Palsy is a neurological condition that is caused
World Cerebral Palsy Day: Oluwabusola’s message of celebration Read More »
