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World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect

I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to …

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Samara Spina Bifida

How Hydrocephalus, Spina Bifida almost subjected intelligent Samara to mercy killing

The expectancy of a first child means the world to every parent. It is an indescribable feeling of joy and happiness not just within the concerned family but beyond. The day of delivery, therefore, couldn’t come any sooner. So it was for Mr Hassan Funmilayo, a Design-Build Architect and Mrs Aminat Funmilayo, an accountant-turned-online fashion …

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Hydrocephalus: Remembering Didunoluwa’s life and her mother’s ordeal

The brain is one of the most vital organs of the body because it controls virtually all functions from thinking, movement to breathing, digestion, beating of the heart and so much more. The importance of a healthy brain can therefore not be underestimated. So, what about when things go south like hearing there’s excess water …

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How Hydrocephalus almost derailed my life

The birth of a child is one of the sweetest experiences in life, and nothing is sweeter than when the child comes out without any complications or conditions, especially those considered congenital (present at birth). That wasn’t for me though. Head circumference is the measurement of a child’s head usually taken when a baby is …

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