World Spina Bifida and Hydrocephalus Awareness Month

Abdur Rahman

Abdur Rahman: My journey of love, acceptance and hope

It all began on a faithful Friday, the 10th of July, 2009, when I was expecting to give birth to a bouncing baby boy, my beloved son, Abdur Rahman. His birth was through a Caesarean section, and I looked forward to welcoming my precious child into the world with joy and excitement. However, the moment […]

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Samara: The daughter who taught me patience, responsibility and love

My daughter, Samara, was born on the 16th of January, 2014 and her arrival changed our lives forever. Her journey began even before she was born. During my pregnancy, my husband and I attended a private hospital in our area. At the time, we were told that the baby I was carrying was a boy

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Omofolawe

Omofolawe: My experience raising a son with Spina Bifida & Hydrocephalus

I am the father of my nine-year-old son Omofolawe Adebayo Kasali. They told me before he was born that something was different. In that moment, fear tried to take over my heart. I wondered what kind of future my son would have. Omofolawe means a child who brings wealth and honor and that is exactly

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Opeyemi Spina Bifida

My bittersweet experience living with Spina Bifida

I was born on the 15th of October 2002 to the family of pastor and pastor Mrs Oluremi Samuel at Ayinke House, Lagos State University Teaching Hospital (LASUTH) where I was diagnosed with Spina Bifida and later referred to Lagos university teaching hospital (LUTH). Two weeks after birth, treatment on a full scale started. I

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My story: Hurdles, Hope, and a Heart that will not give up

My story is not a story of a life without hurdles. It is a story of moving forward when the road feels hard. It is a story of courage that grows in the quiet moments. It is a story of hope that refuses to fade. It is a story of dreams that will not be

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Spina Bifida

How brilliant 14-year-old Opeyemi is defying the odds living with Spina Bifida

In an earlier article about Samara Funmilayo, her parents never thought a life-long neurological condition like Spina Bifida and Hydrocephalus (SBH) would come the way of their daughter and first child. That was pretty much the same expectation of Mr Oluwaseun Adesina, a realtor, and Mrs Christiana Adesina, a hair stylist, when their first child

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Rereoluwa Adeolu Spina Bifida

WSBH Day 2023: My experience living With Spina Bifida

Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw

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