The day my journey as a father took a different turn My son, Testimony, was born on 16 January 20007 at the Federal Medical Centre within the Railway Compound, Ebute Metta, Lagos, Nigeria. His birth was a wonderful moment for me. He was delivered through a Caesarean section, and I had the privilege of carrying […]
My son, my starboy: A father’s journey with Spina Bifida Read More »
I am the father of my nine-year-old son Omofolawe Adebayo Kasali. They told me before he was born that something was different. In that moment, fear tried to take over my heart. I wondered what kind of future my son would have. Omofolawe means a child who brings wealth and honor and that is exactly
Omofolawe: My experience raising a son with Spina Bifida & Hydrocephalus Read More »
I was born on the 15th of October 2002 to the family of pastor and pastor Mrs Oluremi Samuel at Ayinke House, Lagos State University Teaching Hospital (LASUTH) where I was diagnosed with Spina Bifida and later referred to Lagos university teaching hospital (LUTH). Two weeks after birth, treatment on a full scale started. I
My bittersweet experience living with Spina Bifida Read More »
I am the last child of my mother. My parents made it clear they would never bubble wrap me or my siblings. While they cared deeply for their children and kept a close eye on them, they also made sure I must experience the same things of other children my age, even though I was
WSBHD2026: A lifetime of experiences growing up with Spina Bifida Read More »
My story is not a story of a life without hurdles. It is a story of moving forward when the road feels hard. It is a story of courage that grows in the quiet moments. It is a story of hope that refuses to fade. It is a story of dreams that will not be
My story: Hurdles, Hope, and a Heart that will not give up Read More »
In an earlier article about Samara Funmilayo, her parents never thought a life-long neurological condition like Spina Bifida and Hydrocephalus (SBH) would come the way of their daughter and first child. That was pretty much the same expectation of Mr Oluwaseun Adesina, a realtor, and Mrs Christiana Adesina, a hair stylist, when their first child
How brilliant 14-year-old Opeyemi is defying the odds living with Spina Bifida Read More »
Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw
WSBH Day 2023: My experience living With Spina Bifida Read More »
