I am the last child of my mother. My parents made it clear they would never bubble wrap me or my siblings. While they cared deeply for their children and kept a close eye on them, they also made sure I must experience the same things of other children my age, even though I was […]
WSBHD2026: A lifetime of experiences growing up with Spina Bifida Read More »
Michelle Acheng was born 10 years ago, in Entebee, Uganda, normal like any other children, but after her birth developed an infection that caused Hydrocephalus. Her biological mother went into denial and decided to first take her little one to native doctors to try and push back her head in the right position. This went
My experience raising a child with Hydrocephalus while living with SBH myself Read More »
September was the month dedicated to raising awareness of various medical conditions, among them Hydrocephalus, which is commemorated in the United States on the 20th. This story was meant to have been published as my contribution to this course, but you will have to forgive me. The words became too heavy for me to pen
The fascinating journey so far raising my little Hydrocephalus warrior Read More »
I have come to return all Glory to God because my life has been a testimony. I have lived with Hydrocephalus, which I was diagnosed with at two months old and was the only survivor out of seven children that had surgery done to correct the condition. My parents were told that I may not
My Hydrocephalus story: From five surgeries, ICU admission to certified journalist Read More »
At only two days old, I had to begin my first life through the walls of the surgical theatre because of Spina Bifida and Hydrocephalus. I was just a fragile little baby girl whose parents had no idea of how life will turn out especially since there was less knowledge was available by that time
Ephrance’s journey in defying the odds against Spina Bifida and Hydrocephalus Read More »
Today, two years ago was one of the most shocking days of my life. I remember sleeping only to be woken up by a call well past midnight that Didiunloluwa Ajayi was sleeping but she is not waking up. I did not understand what was going on and said, ehn no worries, she will wake
Didiunloluwa Ajayi: Celebrating the gem that conquered Hydrocephalus Read More »
On the 27th of October, 2023, a beautiful Friday morning, I woke up grateful and thankful to God for the privilege to see another new day even as I continue living with Hydrocephalus. I woke with body pain, and as I mentioned in a previous story that I do physiotherapy regularly so as to regain
Hydrocephalus: The painful physiotherapy experience I’m conquering Read More »
Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International
International Women’s Day: How Nadongo uses her SBH disability to accelerate progress Read More »
Living with Hydrocephalus has been a challenging one. Most times I wake up with headaches and most times body pain. I did a shunt replacement for the Hydrocephalus on March 2 last year at Obafemi Awolowo Teaching Hospital in Ile-Ife. I remember when the surgery was done, a lot of doctors were inside the theatre.
Hydrocephalus: My shunt replacement surgery experience Read More »
I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to
World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect Read More »
