Hydrocephalus advocacy

Ephrance International Women’s Day

International Women’s Day: How Nadongo uses her SBH disability to accelerate progress

Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International …

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Funto Oguntiloye Hydrocephalus

Hydrocephalus: My shunt replacement surgery experience

Living with Hydrocephalus has been a challenging one. Most times I wake up with headaches and most times body pain. I did a shunt replacement for the Hydrocephalus on March 2 last year at Obafemi Awolowo Teaching Hospital in Ile-Ife. I remember when the surgery was done, a lot of doctors were inside the theatre. …

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World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect

I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to …

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Funto Oguntiloye Hydrocephalus

Hydrocephalus: How coping with discrimination strengthened Funto’s mental health

Nigerians living with disabilities are often marginalised and discriminated against, which has dire consequences not only for their daily living but mental health as well. The nine-month process from pregnancy to childbirth can be very complicated and delicate. When the child is born healthy however, those fears and anxieties are put to bed. Like for …

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How Hydrocephalus brought out untapped potentials in me

Everyone enjoys lemonade but never takes time to look deep into what was put together to get the lovely lemonade we drink with happiness. Lime/ Lemon on its own is sour and unpleasant to our taste buds until it is refined and some sweeteners added to it. Hydrocephalus was my own lemon but I never …

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Modupe Ajayi Hydrocephalus

Hydrocephalus: The first step on the journey of transformation

God orchestrated my journey, set doctors, nurses in place, gave me the gift of men too. And though it seems she was rejected by her very own, God gave her many fathers and mothers in return who loved her like their very own. And throughout her journey, she never lacked love. She thrived through love. …

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Samara Spina Bifida

How Hydrocephalus, Spina Bifida almost subjected intelligent Samara to mercy killing

The expectancy of a first child means the world to every parent. It is an indescribable feeling of joy and happiness not just within the concerned family but beyond. The day of delivery, therefore, couldn’t come any sooner. So it was for Mr Hassan Funmilayo, a Design-Build Architect and Mrs Aminat Funmilayo, an accountant-turned-online fashion …

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Hydrocephalus: Remembering Didunoluwa’s life and her mother’s ordeal

The brain is one of the most vital organs of the body because it controls virtually all functions from thinking, movement to breathing, digestion, beating of the heart and so much more. The importance of a healthy brain can therefore not be underestimated. So, what about when things go south like hearing there’s excess water …

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How Hydrocephalus almost derailed my life

The birth of a child is one of the sweetest experiences in life, and nothing is sweeter than when the child comes out without any complications or conditions, especially those considered congenital (present at birth). That wasn’t for me though. Head circumference is the measurement of a child’s head usually taken when a baby is …

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