The day my journey as a father took a different turn My son, Testimony, was born on 16 January 20007 at the Federal Medical Centre within the Railway Compound, Ebute Metta, Lagos, Nigeria. His birth was a wonderful moment for me. He was delivered through a Caesarean section, and I had the privilege of carrying […]
My son, my starboy: A father’s journey with Spina Bifida Read More »
I am the father of my nine-year-old son Omofolawe Adebayo Kasali. They told me before he was born that something was different. In that moment, fear tried to take over my heart. I wondered what kind of future my son would have. Omofolawe means a child who brings wealth and honor and that is exactly
Omofolawe: My experience raising a son with Spina Bifida & Hydrocephalus Read More »
I was born on the 15th of October 2002 to the family of pastor and pastor Mrs Oluremi Samuel at Ayinke House, Lagos State University Teaching Hospital (LASUTH) where I was diagnosed with Spina Bifida and later referred to Lagos university teaching hospital (LUTH). Two weeks after birth, treatment on a full scale started. I
My bittersweet experience living with Spina Bifida Read More »
I am the last child of my mother. My parents made it clear they would never bubble wrap me or my siblings. While they cared deeply for their children and kept a close eye on them, they also made sure I must experience the same things of other children my age, even though I was
WSBHD2026: A lifetime of experiences growing up with Spina Bifida Read More »
My story is not a story of a life without hurdles. It is a story of moving forward when the road feels hard. It is a story of courage that grows in the quiet moments. It is a story of hope that refuses to fade. It is a story of dreams that will not be
My story: Hurdles, Hope, and a Heart that will not give up Read More »
Michelle Acheng was born 10 years ago, in Entebee, Uganda, normal like any other children, but after her birth developed an infection that caused Hydrocephalus. Her biological mother went into denial and decided to first take her little one to native doctors to try and push back her head in the right position. This went
My experience raising a child with Hydrocephalus while living with SBH myself Read More »
Being born in the 1960s in Nigeria is peculiar because that was the period the country gained its independence after many years of colonial rule under the British. It was a period of new beginnings and the unknown, and one of such people born in that era was Olufunke Ogunrombi. Born on January 3, 1965,
September was the month dedicated to raising awareness of various medical conditions, among them Hydrocephalus, which is commemorated in the United States on the 20th. This story was meant to have been published as my contribution to this course, but you will have to forgive me. The words became too heavy for me to pen
The fascinating journey so far raising my little Hydrocephalus warrior Read More »
In an earlier article about Samara Funmilayo, her parents never thought a life-long neurological condition like Spina Bifida and Hydrocephalus (SBH) would come the way of their daughter and first child. That was pretty much the same expectation of Mr Oluwaseun Adesina, a realtor, and Mrs Christiana Adesina, a hair stylist, when their first child
How brilliant 14-year-old Opeyemi is defying the odds living with Spina Bifida Read More »
I have come to return all Glory to God because my life has been a testimony. I have lived with Hydrocephalus, which I was diagnosed with at two months old and was the only survivor out of seven children that had surgery done to correct the condition. My parents were told that I may not
My Hydrocephalus story: From five surgeries, ICU admission to certified journalist Read More »
