At only two days old, I had to begin my first life through the walls of the surgical theatre because of Spina Bifida and Hydrocephalus. I was just a fragile little baby girl whose parents had no idea of how life will turn out especially since there was less knowledge was available by that time […]
Ephrance’s journey in defying the odds against Spina Bifida and Hydrocephalus Read More »
I know that headline sounds funny. Like I’m mad or crazy, right? Feel free to be the judge of that. 😝 When we hear disability, what easily comes to mind is limitation, rejection, discrimination, stereotyping, struggle, suffering, hardship, evil, witchcraft, disaster and everything that one can negatively think of. These are the standards society has
It’s time to laugh at disability Read More »
Today, two years ago was one of the most shocking days of my life. I remember sleeping only to be woken up by a call well past midnight that Didiunloluwa Ajayi was sleeping but she is not waking up. I did not understand what was going on and said, ehn no worries, she will wake
Didiunloluwa Ajayi: Celebrating the gem that conquered Hydrocephalus Read More »
On the 27th of October, 2023, a beautiful Friday morning, I woke up grateful and thankful to God for the privilege to see another new day even as I continue living with Hydrocephalus. I woke with body pain, and as I mentioned in a previous story that I do physiotherapy regularly so as to regain
Hydrocephalus: The painful physiotherapy experience I’m conquering Read More »
Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International
International Women’s Day: How Nadongo uses her SBH disability to accelerate progress Read More »
Living with Hydrocephalus has been a challenging one. Most times I wake up with headaches and most times body pain. I did a shunt replacement for the Hydrocephalus on March 2 last year at Obafemi Awolowo Teaching Hospital in Ile-Ife. I remember when the surgery was done, a lot of doctors were inside the theatre.
Hydrocephalus: My shunt replacement surgery experience Read More »
Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw
WSBH Day 2023: My experience living With Spina Bifida Read More »
Every October 6th is celebrated as World Cerebral Palsy Day. It’s a day to raise awareness about the condition and also to push for demands in creating an enabling and inclusive environment for those living with the condition. This year’s theme is titled millions of reasons. Cerebral Palsy is a neurological condition that is caused
World Cerebral Palsy Day: Oluwabusola’s message of celebration Read More »
I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to
World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect Read More »
The African continent is a place where traditional beliefs are rife. According to divinity scholar Jacob Olupona, about 10% of Africa’s 1.4 billion people are adherents of traditional beliefs. However often than not, these traditional beliefs are intertwined with the more predominant religious beliefs that make up the remaining 90%, making it difficult to draw
