On the 27th of October, 2023, a beautiful Friday morning, I woke up grateful and thankful to God for the privilege to see another new day even as I continue living with Hydrocephalus. I woke with body pain, and as I mentioned in a previous story that I do physiotherapy regularly so as to regain […]
Hydrocephalus: The painful physiotherapy experience I’m conquering Read More »
Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International
International Women’s Day: How Nadongo uses her SBH disability to accelerate progress Read More »
Living with Hydrocephalus has been a challenging one. Most times I wake up with headaches and most times body pain. I did a shunt replacement for the Hydrocephalus on March 2 last year at Obafemi Awolowo Teaching Hospital in Ile-Ife. I remember when the surgery was done, a lot of doctors were inside the theatre.
Hydrocephalus: My shunt replacement surgery experience Read More »
Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw
WSBH Day 2023: My experience living With Spina Bifida Read More »
Every October 6th is celebrated as World Cerebral Palsy Day. It’s a day to raise awareness about the condition and also to push for demands in creating an enabling and inclusive environment for those living with the condition. This year’s theme is titled millions of reasons. Cerebral Palsy is a neurological condition that is caused
World Cerebral Palsy Day: Oluwabusola’s message of celebration Read More »
I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to
World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect Read More »
The African continent is a place where traditional beliefs are rife. According to divinity scholar Jacob Olupona, about 10% of Africa’s 1.4 billion people are adherents of traditional beliefs. However often than not, these traditional beliefs are intertwined with the more predominant religious beliefs that make up the remaining 90%, making it difficult to draw
Nigerians living with disabilities are often marginalised and discriminated against, which has dire consequences not only for their daily living but mental health as well. The nine-month process from pregnancy to childbirth can be very complicated and delicate. When the child is born healthy however, those fears and anxieties are put to bed. Like for
Hydrocephalus: How coping with discrimination strengthened Funto’s mental health Read More »
Everyone enjoys lemonade but never takes time to look deep into what was put together to get the lovely lemonade we drink with happiness. Lime/ Lemon on its own is sour and unpleasant to our taste buds until it is refined and some sweeteners added to it. Hydrocephalus was my own lemon but I never
How Hydrocephalus brought out untapped potentials in me Read More »
The expectancy of a first child means the world to every parent. It is an indescribable feeling of joy and happiness not just within the concerned family but beyond. The day of delivery, therefore, couldn’t come any sooner. So it was for Mr Hassan Funmilayo, a Design-Build Architect and Mrs Aminat Funmilayo, an accountant-turned-online fashion
How Hydrocephalus, Spina Bifida almost subjected intelligent Samara to mercy killing Read More »
