Spina Bifida — Hydrocephalus Stories

How brilliant 14-year-old Opeyemi is defying the odds living with Spina Bifida

Other Neurological-Related / Christiana Adesina, Disability advocacy, Neurological condition, Oluwaseun Adesina, Opeyemi Adesina, Spina Bifida, Spina Bifida advocacy, spinal cord surgery, triumph story, World Spina Bifida and Hydrocephalus Awareness Month, World Spina Bifida and Hydrocephalus Day, WSBH Awareness Month, WSBH Day 2025

In an earlier article about Samara Funmilayo, her parents never thought a life-long neurological condition like Spina Bifida and Hydrocephalus (SBH) would come the way of their daughter and first child. That was pretty much the same expectation of Mr Oluwaseun Adesina, a realtor, and Mrs Christiana Adesina, a hair stylist, when their first child […]

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Ephrance’s journey in defying the odds against Spina Bifida and Hydrocephalus

Other Neurological-Related / Disability advocacy, Ephrance Nadongo, Hydrocephalus advocacy, Hydrocephalus story, Neurological condition, SBH, Spina Bifida, Spina Bifida advocacy, Spina Bifida and Hydrocephalus, spinal cord surgery, triumph story, Uganda

At only two days old, I had to begin my first life through the walls of the surgical theatre because of Spina Bifida and Hydrocephalus. I was just a fragile little baby girl whose parents had no idea of how life will turn out especially since there was less knowledge was available by that time

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International Women’s Day: How Nadongo uses her SBH disability to accelerate progress

Hydrocephalus, Other Neurological-Related / brain surgery, Disability advocacy, Ephrance Nadongo, Hydrocephalus & Spina Bifida, Hydrocephalus advocacy, Hydrocephalus story, International Women's Day, Neurological condition, Spina Bifida, Spina Bifida advocacy, spinal cord surgery, triumph story, Uganda

Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International

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WSBH Day 2023: My experience living With Spina Bifida

Other Neurological-Related / Disability advocacy, Rereoluwa Adeolu, Spina Bifida, Spina Bifida advocacy, spinal cord surgery, triumph story, World Spina Bifida and Hydrocephalus Awareness Month, World Spina Bifida and Hydrocephalus Day, WSBH Awareness Month, WSBH Day 2023

Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw

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World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect

Hydrocephalus, Other Neurological-Related / brain surgery, Disability advocacy, Ephrance Nadongo, Hydrocephalus & Spina Bifida, Hydrocephalus advocacy, Hydrocephalus story, Neurological condition, Shunt placement, Spina Bifida, Spina Bifida advocacy, spinal cord surgery, triumph story, Uganda, Water in the brain, World Hydrocephalus Day

I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to

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How Hydrocephalus, Spina Bifida almost subjected intelligent Samara to mercy killing

Hydrocephalus, Other Neurological-Related / brain surgery, Hassan Funmilayo, Hydrocephalus, Hydrocephalus & Spina Bifida, Hydrocephalus advocacy, Hydrocephalus story, Inclusive education, Inclusive learning, Mosuru Adeniji, Neurological condition, Outliers School, Samara Funmilayo, Shunt placement, Spina Bifida, spinal cord surgery, triumph story, Water in the brain

The expectancy of a first child means the world to every parent. It is an indescribable feeling of joy and happiness not just within the concerned family but beyond. The day of delivery, therefore, couldn’t come any sooner. So it was for Mr Hassan Funmilayo, a Design-Build Architect and Mrs Aminat Funmilayo, an accountant-turned-online fashion

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