On the 27th of October, 2023, a beautiful Friday morning, I woke up grateful and thankful to God for the privilege to see another new day even as I continue living with Hydrocephalus. I woke with body pain, and as I mentioned in a previous story that I do physiotherapy regularly so as to regain […]
Hydrocephalus: The painful physiotherapy experience I’m conquering Read More »
Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International
International Women’s Day: How Nadongo uses her SBH disability to accelerate progress Read More »
Living with Hydrocephalus has been a challenging one. Most times I wake up with headaches and most times body pain. I did a shunt replacement for the Hydrocephalus on March 2 last year at Obafemi Awolowo Teaching Hospital in Ile-Ife. I remember when the surgery was done, a lot of doctors were inside the theatre.
Hydrocephalus: My shunt replacement surgery experience Read More »
I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to
World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect Read More »
Nigerians living with disabilities are often marginalised and discriminated against, which has dire consequences not only for their daily living but mental health as well. The nine-month process from pregnancy to childbirth can be very complicated and delicate. When the child is born healthy however, those fears and anxieties are put to bed. Like for
Hydrocephalus: How coping with discrimination strengthened Funto’s mental health Read More »
Everyone enjoys lemonade but never takes time to look deep into what was put together to get the lovely lemonade we drink with happiness. Lime/ Lemon on its own is sour and unpleasant to our taste buds until it is refined and some sweeteners added to it. Hydrocephalus was my own lemon but I never
How Hydrocephalus brought out untapped potentials in me Read More »
God orchestrated my journey, set doctors, nurses in place, gave me the gift of men too. And though it seems she was rejected by her very own, God gave her many fathers and mothers in return who loved her like their very own. And throughout her journey, she never lacked love. She thrived through love.
Hydrocephalus: The first step on the journey of transformation Read More »
The expectancy of a first child means the world to every parent. It is an indescribable feeling of joy and happiness not just within the concerned family but beyond. The day of delivery, therefore, couldn’t come any sooner. So it was for Mr Hassan Funmilayo, a Design-Build Architect and Mrs Aminat Funmilayo, an accountant-turned-online fashion
How Hydrocephalus, Spina Bifida almost subjected intelligent Samara to mercy killing Read More »
The brain is one of the most vital organs of the body because it controls virtually all functions from thinking, movement to breathing, digestion, beating of the heart and so much more. The importance of a healthy brain can therefore not be underestimated. So, what about when things go south like hearing there’s excess water
Hydrocephalus: Remembering Didunoluwa’s life and her mother’s ordeal Read More »
The birth of a child is one of the sweetest experiences in life, and nothing is sweeter than when the child comes out without any complications or conditions, especially those considered congenital (present at birth). That wasn’t for me though. Head circumference is the measurement of a child’s head usually taken when a baby is
How Hydrocephalus almost derailed my life Read More »
