I am the last child of my mother. My parents made it clear they would never bubble wrap me or my siblings. While they cared deeply for their children and kept a close eye on them, they also made sure I must experience the same things of other children my age, even though I was […]
WSBHD2026: A lifetime of experiences growing up with Spina Bifida Read More »
Michelle Acheng was born 10 years ago, in Entebee, Uganda, normal like any other children, but after her birth developed an infection that caused Hydrocephalus. Her biological mother went into denial and decided to first take her little one to native doctors to try and push back her head in the right position. This went
My experience raising a child with Hydrocephalus while living with SBH myself Read More »
At only two days old, I had to begin my first life through the walls of the surgical theatre because of Spina Bifida and Hydrocephalus. I was just a fragile little baby girl whose parents had no idea of how life will turn out especially since there was less knowledge was available by that time
Ephrance’s journey in defying the odds against Spina Bifida and Hydrocephalus Read More »
I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to
World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect Read More »
