Spina Bifida advocacy

Ephrance International Women’s Day

International Women’s Day: How Nadongo uses her SBH disability to accelerate progress

Hydrocephalus, Other Neurological-Related / , , , , , , , , , , , ,

Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International […]

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Rereoluwa Adeolu Spina Bifida

WSBH Day 2023: My experience living With Spina Bifida

Other Neurological-Related / , , , , , , , , ,

Acording to my mum, I was born on Tuesday 27th, April 1999 at a hospital in Lagos State. Immediately I came out of my mom’s womb, it was discovered that I had an opening at my back where my spinal cord was not only visible but drawn out of my spinal bones. The doctors saw

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World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect

Hydrocephalus, Other Neurological-Related / , , , , , , , , , , , , , ,

I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to

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