Hydrocephalus & Spina Bifida — Hydrocephalus Stories

International Women’s Day: How Nadongo uses her SBH disability to accelerate progress

Hydrocephalus, Other Neurological-Related / brain surgery, Disability advocacy, Ephrance Nadongo, Hydrocephalus & Spina Bifida, Hydrocephalus advocacy, Hydrocephalus story, International Women's Day, Neurological condition, Spina Bifida, Spina Bifida advocacy, spinal cord surgery, triumph story, Uganda

Having a disability in certain parts of world like in Africa can be a living hell. Such has been the experience of Ephrance Nadongo, a 26-year-old Ugandan living with Spina Bifida and Hydrocephalus (SBH) from birth but is making a difference and worthy of a spotlight on the occasion of International Women’s Day 2024. International […]

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World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect

Hydrocephalus, Other Neurological-Related / brain surgery, Disability advocacy, Ephrance Nadongo, Hydrocephalus & Spina Bifida, Hydrocephalus advocacy, Hydrocephalus story, Neurological condition, Shunt placement, Spina Bifida, Spina Bifida advocacy, spinal cord surgery, triumph story, Uganda, Water in the brain, World Hydrocephalus Day

I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to

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How Hydrocephalus, Spina Bifida almost subjected intelligent Samara to mercy killing

Hydrocephalus, Other Neurological-Related / brain surgery, Hassan Funmilayo, Hydrocephalus, Hydrocephalus & Spina Bifida, Hydrocephalus advocacy, Hydrocephalus story, Inclusive education, Inclusive learning, Mosuru Adeniji, Neurological condition, Outliers School, Samara Funmilayo, Shunt placement, Spina Bifida, spinal cord surgery, triumph story, Water in the brain

The expectancy of a first child means the world to every parent. It is an indescribable feeling of joy and happiness not just within the concerned family but beyond. The day of delivery, therefore, couldn’t come any sooner. So it was for Mr Hassan Funmilayo, a Design-Build Architect and Mrs Aminat Funmilayo, an accountant-turned-online fashion

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