Ephrance Nadongo

Mitchell Hydrocephalus

My experience raising a child with Hydrocephalus while living with SBH myself

Michelle Acheng was born 10 years ago, in Entebee, Uganda, normal like any other children, but after her birth developed an infection that caused Hydrocephalus. Her biological mother went into denial and decided to first take her little one to native doctors to try and push back her head in the right position. This went […]

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Ephrance Spina Bifida and Hydrocephalus

Ephrance’s journey in defying the odds against Spina Bifida and Hydrocephalus

At only two days old, I had to begin my first life through the walls of the surgical theatre because of Spina Bifida and Hydrocephalus. I was just a fragile little baby girl whose parents had no idea of how life will turn out especially since there was less knowledge was available by that time

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World Hydrocephalus Day: How Ephrance overcame hopelessness, discrimination and neglect

I am Ephrance Nadongo. I was born like any other child 25 years ago in Kampala, the capital city of Uganda but soon after my birth, doctors realised I had a birth defect called Spina Bifida, a very delicate birth defect that would affect my entire life. At only three days old, I had to

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